I would like you to meet Miss Josephine.
Josephine Elizabeth is the the beautiful daughter of my little brother Jon and his sweet wife Clara. Her beautiful story is posted on their blog.
Josephine was born with Trisomy 18. Trisomy 18 is a genetic disorder associated with the presence of extra material from chromosome 18. Fifty percent of infants with this condition do not survive beyond the first week of life. Only 5 -10% of infants survive to their first birthday. The outcome is fatal - however, each case is unique and there is no timeline for Josephine's survival. Josephine has many of the outward characteristics as well as all four of the heart defects associated with T-18.
My niece Angelic and I have come together to create a blog for Miss Josephine to host a benefit auction to help Jon and Clara with Josephine's medical expenses.
We are asking anyone how has been touched by Josephine's story, or by Trisomy 18 in any way to please bid on items in the auction.
If you would like to donate an item to be included in the auction please feel free to contact me through a post here or an email. The auction will be held through Ebay starting on November 26th.
As items are donated they will be posted at the Josephine Blog and here.
If you would like to make a monetary donation, that would be greatly appreciated as well.
THANK YOU!
Saturday, November 22, 2008
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1 comment:
I'd love to help!
I can donate a toy from my store (www.nontoxictots.com) and spread the word on a couple forums. Email me. mamaknj at msn . com
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